Upcoming Events from Roon Nonprofit Partners:
January 19, 2024: Los Angeles, CA. ALS Association Golden West ChapterChampions for Cures and Care Gala.
This elegant annual event celebrates extraordinary individuals and organizations whose contributions and efforts advance Golden West’s mission priorities. Guests will enjoy a festive evening featuring cocktails and wine tasting, a silent and live auction, gourmet dinner, celebrity guests, lively musical entertainment, and the presentation of Golden West’s highest honors, The Essey Awards.
January 20, 2024. New Providence, NJ. ALS TDI: Acing ALS.
This evening will be filled with tennis, cocktails, dinner, a silent auction, photo booth, games, a raffle and more!
January 24, 2024. Online. Everything ALS.
Everyday Brain-computer Interfaces and ALS.
January 25, 2024. Online. ALS TDI: ALS Town Hall.
The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.
January 27, 2024. Stillwater, MN. ALS TDI: Minnesota Ales for ALS Release Party.
Guests will be able to try their new Ales for ALS™ beer, enjoy live music, food trucks, raffle, silent auction featuring: great trips, professional sports games & memorabilia.
January 28, 2024. Austin, TX. ALS TDI: Austin Ales for ALS Release Party.
Join us on Sunday, January 28th for the release of a limited edition triple hazy IPA from Beerburg!
January 31, 2024. Online. I AM ALS: A conversation with a genetic counselor: Could the ALS in my family be genetic?.
Join us for a discussion with genetic counselor Laynie Dratch, ScM CGC, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders, the genetic testing process, and more
January 31, 2024. Online. Everything ALS: Fireside Chats.
Join us for an opportunity to be with caring people who wish to chat, listen, share, and learn.
February 24, 2024. Lafayette, LA. ALS Association: Targeting ALS Lafayette Clay Shoot.
Combining fun and fundraising into one exciting day, this event offers a compelling opportunity to unite in honor of Louisiana's ALS community and generate funds that further our mission to discover treatments and a cure for ALS and serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
February 21-24, 2024. Hayward, WI. ALS Association: Birkebeiner.
Birkie Week kicks off on Wednesday February 21, with different ski events each day until Saturday, February 24th.
February 24, 2024. Milwaukee, WI. ALS Association: ALS Night with the Admirals.
Join us for a pre-game party with live music, food and drinks, a special commemorative item and more, followed by the game where the Admirals will dominate on the ice against the Chicago Wolves.
March 2, 2024. Kansas City, MO. ALS Association: A Night of Hope Gala.
Night of Hope is The ALS Association’s premier dining event. This event brings together 500+ guests for a delicious dinner, a live auction, and award presentations to cap off another year of progress.
March 8, 2024. Boston, MA. ALS ONE: Snow Ball Gala.
Our annual Snow Ball Gala is our most beloved, anticipated, and important event of the year to support our critical research and care.
March 10-12, 2024. Online. Hope Loves Company: Virtual Hope Loves Company Camp.
Virtual Camp HLC will take place over the course of a weekend, from Friday evening to Sunday afternoon (just like traditional Camp HLC). We will enjoy games and activities, develop friendships, and chat with peers who share in our experiences.
March 16, 2024. Orlando, FL. ALS Association: Walk to Defeat ALS Orlando.
Walk around Lake Eola Park while supporting bold and urgent innovation as we march together toward a treatment and ultimately a cure for ALS.
March 17th, 2024. New York, NY. ALS TDI: United Airlines NYC Half Marathon 2024.
On Sunday, March 17, 2024, our runners will complete the 13.1-mile run through the streets of NYC to raise awareness for ALS TDI.
March 23, 2024. Sarasota, FL. ALS Association: Walk to Defeat ALS Sarasota.
Walk around Payne Park while supporting bold and urgent innovation as we march together toward a treatment and ultimately a cure for ALS.
March 23, 2024. Des Moines, IA. ALS Association: ALS Night with the Iowa Wild.
Enjoy a night out watching hockey while supporting ALS research! If you are currently living with ALS, we'd like to invite you and one caregiver or companion to join us with two complimentary tickets to the game.
Weekly Support Groups & Webinars:
- Monthly online yoga and meditation, and support groups for veterans, LGBTQ+, trach and vent support, familial ALS, grief, people living in various parts of California and Hawaii, Spanish speakers, and open to all looking for community. ALS Association Golden West Chapter
- Weekly support groups for veterans, patients and caregivers, weekly committee meetings for people looking to advocate, and monthly support groups for people in Chicago and bereavement support. I AM ALS
- Monthly support groups for mothers of patients with ALS, caregivers, women with ALS, men with ALS, those who have lost a loved one to ALS, and a gathering focused on trauma awareness and healing as well as a quarterly support group for veterans with ALS. Compassionate Care ALS
- Monthly support groups for those living in Illinois, caregivers, and bereavement. Les Turner ALS Foundation
Mark Your Calendars:
Various dates. New Jersey, Illinois, Indiana, Massachusetts, Georgia, and California. Hope Loves Company: Hope Loves Company Camp. Camp HLC is typically a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. Families are invited as well. It is an opportunity to have fun, be challenged through team building exercises, and meet peers who are going through a similar experience. Camp HLC is provided free for our ALS families by Hope Loves Company and our sponsors. All meals and activities are included. Camp HLC offers so many fun experiences, including hikes, games, zip lines, rock climbing, boating, fishing, a ropes course, archery, yoga, arts and crafts, group therapy sessions, music, and much more.
April 13, 2024. Chicago, IL + Online. Les Turner ALS Foundation: 36th Annual Hope Through Caring Gala. This year, as for the past 35 years, the Les Turner ALS Foundation will bring together Chicago's top minds in ALS research and care, business, academics, philanthropy, and most importantly, people living with ALS, for one of the city's most elegant and most prestigious black-tie optional events of the year.
October 5, 2024. Boston, MA. ALS TDI: White Coat Affair Gala. Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS.
October 21-24, 2024. Clearwater, FL + Online. NEALS: 2024 Annual NEALS Meeting. Each year the Northeast ALS Consortium (NEALS) holds an annual meeting to review current ALS research and member initiatives, to discuss potential new therapies, and to prepare our membership for clinical trials in ALS.
November 3, 2024. New York, NY. ALS TDI: TCS New York City Marathon 2024.
Team ALS TDI features runners from all over the globe with one universal mission, finding a cure for ALS. On Sunday, November 3rd, our runners will complete the 26.2 mile run around all five boroughs of NYC to raise awareness for ALS TDI.
November 13, 2024. Chicago, IL. Les Turner ALS Foundation: 2024 Chicago Marathon. The funds you raise go toward our mission provide the most comprehensive care and support to people living with ALS and their families so that they can confidently navigate the disease, and advance scientific research for the prevention, treatment, and cure of ALS.
December 6-8, 2024. Montreal, Canada. MND Association: 35th International Symposium on ALS/MND.
Each year, the Symposium attracts over 1,000 delegates, representing the energy and dynamism of the global MND research community. It is the largest medical and scientific conference specific to MND/ALS and is the premier event in the MND research calendar for discussion on the latest advances in research and clinical management.
